Policy, Advocacy, News - 12/6/2013

Latest from PAN

Healthcare.gov Updates and More Important Dates to Remember
Earlier this week, the Obama Administration announced a number of updates to the healthcare.gov website designed to improve and ease user experience. Learn more.

Institute of Medicine Releases a Report on Veterans and Agent Orange
This week, the Institute of Medicine released its ninth report on the effects of Agent Orange on U.S. military personnel serving in Vietnam between 1962 and 1971. Learn more.

NIH Coordinating NeuroBioBank for One-Stop Access to Brain Tissue
The National Institutes of Health (NIH) will be shifting resources to create a web-based resource for researchers to share post-mortem brain tissue at neurobiobank.nih.gov. This change will help expedite research on brain disorders, according to the NIH. Learn more.

New Poll Finds Americans are Pessimistic about Future of American Research
According to a new poll by Research!America and the American Society of Hematology, Americans predict China will surpass the U.S. in science and innovation by 2020 and feel that elected officials and the federal government are not paying enough attention to combating diseases or spending enough on medical research. Learn more.

Help PAN Make 2014 a Success!
Despite a challenging 2013, PAN has been successful in advocating on behalf of the Parkinson’s community. With your help, PAN will continue to build on those successes in 2014. Learn more.

 

Stay Engaged

Fewer than 30 Days Remain Until Medicare Coverage Barriers Take Effect!
Tell your members of Congress to stop the therapy cap. Take action.

Call for Posters: Submit Your Abstracts & Share this Opportunity with Others
PAN is offering up to 18 postdoctoral fellows the chance to present their posters in a reception session at the 2014 PAN Leadership Forum designed for PAN advocate leaders from around the country. Deadline is TODAY by 5 p.m. ET. Learn more.

 

In The News

Telemedicine brings Parkinson's care to 'anyone, anywhere'
MedicalXpress.com | December 4, 2013
A new study shows that a neurologist in an office thousands of miles away can deliver effective specialized care to people with Parkinson's disease. More…


Treating Alzheimer's And Parkinson's With The Same Drug Might Be Possible (But Don't Get Your Hopes Up Yet)
International Business Times | December 3, 2013
Israeli scientists have found a drug that holds promise for a range of brain diseases, including Alzheimer’s, but you may want to hold your hopes for a few years or so. More…


Deep brain stimulation surgery helps some Parkinson's patients
Las Vegas Review-Journal | November 30, 2013
Two years ago, Kip Smith frequently couldn’t sleep more than 30 minutes a night. No matter what he did, he couldn’t keep his legs from trembling or escape the spasms that jerked him awake. More…


Do Genetic Tests Need Doctors? FDA Defends Its Challenge to 23andMe
Bloomberg Businessweek | November 27, 2013
Alberto Gutierrez doesn’t want to look like the bad guy who’s getting between you and your DNA. More…


Obamacare fix wins applause, but troubles remain
Politico | December 4, 2013
For House Democratic Caucus Chairman Xavier Becerra, the new, improved Obamacare website is better than it was — but the law won’t be a success "until every American who has a chance to qualify for these health insurance policies gets it." More…


Could Tigar Protein Hold Key To Treating Parkinson's Disease? Blocking Protein Prevents Cell Death
Medical Daily | December 2, 2013
A newly discovered protein stands to transform the treatment of Parkinson's disease. More…


Medicare and Obamacare: How do they mix?
San Jose Mercury News | December 3, 2013
Christmas is coming and so are the deadlines for millions of Americans to sign up for health insurance. More…