October 2011 Monthly Message

Gretchen and Michael Church
PAN’s Florida State Coordinators Gretchen and Michael Church share their expertise and insights on what advocacy strategies work for their elected officials, and offer advice to new advocates who want to become involved in reaching out to effect change.  Read more…

Funding for Medical Research at the National Institutes of Health:  Latest News
PAN’s Director of Government Relations, Becca O’Connor, provides an update on budget talks and other Capitol Hill activities related to Parkinson’s disease and NIH funding.  Read more…

Opportunity to Submit Comments on Clinical Trial Informed-Consent Process
The U.S. Government has policies in place designed to protect individuals who participate in federally funded human research (e.g., clinical trials).  In July, the U.S. Department of Health and Human Services (HHS) announced it is evaluating these rules, and considering major changes to them.  Read more…

Workplace Giving Programs Benefit PAN
Workplace giving generates billions of dollars of donations to non-profits across America.  To learn more about employer matches, click here.

NPF Moving Day Raises Awareness and Promotes Exercise for People with Parkinson’s
The National Parkinson Foundation is kicking off Moving Day -- a nationwide campaign to raise awareness about Parkinson’s disease, and encourage exercise for people with Parkinson’s.  Read more about Moving Day here, and find out where you can find one of their walks in a city near you!

NIH Economic Impact Study
United for Medical Research published a paper called “An Economic Engine: NIH Research, Employment, and the Future of the Medical Innovation Sector” that discusses the widespread economic benefits of NIH spending.  The full paper can be found here.

PAN Talks Advocacy with CurePSP Foundation
PAN CEO Amy Comstock Rick and Government Relations Director Becca O’Connor conducted a webinar for the Cure PSP Foundation about the importance of advocacy around federal policy for biomedical research.  The webinar can be viewed here.

BioCenturyTV:  The FDA and Scientific vs. Regulatory Risk
In this two-part series, BioCentury TV interviews the Food and Drug Administration’s Janet Woodcock and Warburg Pincus’ Jonathan Leff about bringing drugs to high-risk patients faster.  Click here to see Part One and Part Two.

Parkinson’s in the Media
A round-up of some recent news articles of interest to the Parkinson’s community.