November 2011 Monthly Message

PAN Launches New, Enhanced Grassroots Advocacy Program
Hayley Carpenter, PAN’s Director of Outreach, talks about how PAN has evolved its grassroots advocacy program to better advance federal policy priorities, and to offer a wider variety of ways advocates can volunteer their time for the Parkinson’s community.  Read more…

Meet Adrienne O’Neill:  PAN’s South Carolina State Director!
PAN’s South Carolina State Director, Adrienne O’Neill, shares her story about how she came to be a part of the Parkinson’s community, and how she works with her Members of Congress to educate them about Parkinson’s disease.  Read more…

PAN Encourages FDA to Ensure Patients’ Concerns are Prioritized in PDUFA Reauthorization Negotiations
PAN’s Director of Government Relations, Becca O’Connor, provides an overview of why the Parkinson’s community should have a seat at the table in ongoing discussions with the Food and Drug Administration, specifically around the reauthorization of a key piece of federal legislation: the Prescription Drug User Fee Act.  Read more…

PAN Needs Your Support!
As the end of the year approaches, PAN asks for your consideration and support as part of your year-end giving plans.  To learn more, or to donate, click here.

CurePSP Foundation Webinar
The CurePSP Foundation is hosting a “PSP: Back to Basics” webinar on Tuesday, November 22nd from 3:00pm - 4:00pm EST.  Amie Peterson, MD, a neurologist with the Parkinson Center of Oregon/Oregon Health and Science University will discuss the historical context of progressive supranuclear palsy, related variants, pathology, epidemiology, genetics, treatment, research, and further resources.  This webinar is held online and is free to attend - click here to register!

Parkinson’s in the Media
A round-up of some recent news articles of interest to the Parkinson’s community.  Click here.