March 2013 Monthly Message

Telemedicine Can Increase Quality of Care for People with Parkinson's, Reduce Costs
Did you know 42% of people with Parkinson's don't get the specialized care of a neurologist or movement disorder specialist and see only a general practitioner for their Parkinson's-related healthcare needs?  Research has shown that people with Parkinson's who receive specialized care are better able to manage their symptoms and the disease.   PAN is working on policy issues around telemedicine and the barriers to care the Parkinson's community deserves.  To learn more, click here.

Twitter Generates Advocacy Results for Parkinson's Postdoctoral Scientist
Columbia University's Nancy Parmalee, Ph.D. was excited to be going on Capitol Hill in February with other PAN advocates to fight for federal biomedical research funding.  Nancy is a postdoctoral scientist who works on human genetics and Parkinson's disease.  She's active on social media and used Twitter to generate nearly 30 letters from scientists to their Members of Congress.  To read her story, click here!

Here's the Latest on the Federal Budget and Sequestration
Congress voted this week to keep the government funded, but sequestration is still in effect.  To read more about what's going on in Washington and the impact on the Parkinson's community, click here.

PAN CEO Guest-Blogs for PhRMA About the Economic Impact of Parkinson's Disease
The Pharmaceutical Researchers and Manufacturers of America invited PAN's CEO Amy Comstock Rick to guest-blog on their widely read industry blog, The Catalyst.  Rick's post discusses the results of two studies published in Movement Disorders, titled "The Current and Projected Economic Burden of Parkinson's Disease in the United States" and "An Economic Model of Parkinson's Disease: Implications for Slowing Progression in the United States."  Click here to read the blog post!

PAN Mourns the Passing of Gerald Feffer
Parkinson's Action Network supporter Gerald Feffer passed away February 13 at his home in Washington, D.C.  Click here to read more.

Rally for Medical Research
NIH Director Dr. Francis Collins is a featured guest speaker at the Rally for Medical Research on Monday, April 8, in Washington, D.C.  To learn more about this educational event, go to  To watch the live video stream the day of, click here!

Honor a Loved One for Parkinson's Awareness Month!
Did you know that April is Parkinson's Awareness Month?  In honor of this special occasion, the Parkinson's Action Network (PAN) is excited to present our annual online Tulip Tribute Garden, where you can plant a virtual tulip to celebrate, honor, or remember your loved ones who have been touched by Parkinson's disease.  If you donate $25 or more, you can post the name of someone you would like to honor on the PAN website with a brief personal message.  Click here to plant a tulip today!

SAVE THE DATE:  2013 Morris K. Udall Awards Dinner is October 8
This year's Morris K. Udall Awards Dinner will be held in Washington, D.C. on Tuesday, October 8.  Watch your email inbox for more details in the coming months!

Parkinson's in the Media
A round-up of some recent news articles of interest to the Parkinson's community.  Click here.

VIDEO:  The Power of Advocacy
Learn why it's important to reach out to your Members of Congress -- how to ask for what you want when emailing, calling, or meeting with congressional staff … why finding common ground and being realistic about the legislative process can help you get what you want … why telling your personal story, and the impact a policy decision has on you, is so important … and, how to follow up your meeting, phone call, or email effectively and get results!  Click here to watch!