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Current Legislative Updates

Senate Bill to Create MS and Parkinson's Disease Registries Introduced
Wednesday, 17 June 2009
The Parkinson’s Action Network (PAN) celebrates Senate introduction of a bill to create Multiple Sclerosis (MS) and Parkinson’s disease registries.  The bill, S. 1273, will create, for the first time, separate, permanent, and coordinated MS and Parkinson’s disease national registries at the Agency for Toxic Substances and Disease Registry (ATSDR) at the Centers for Disease Control and Prevention (CDC).
 
Final Day to Submit Stem Cell Comments!
Tuesday, 26 May 2009
Today is the last day to comment on the National Institutes of Health’s (NIH) draft stem cell guidelines.  PAN encourages all advocates to express their support for human embryonic stem cell research that provides hope to millions of Americans, including the Parkinson’s disease community.  Comments will be accepted on the NIH webpage until 11:00 p.m. on May 26, 2009.

 
Isakson Joins Parkinson's Caucus Leadership
Wednesday, 29 April 2009
The Parkinson's Action Network (PAN) is pleased to announce that Senator Johnny Isakson has become the newest Co-Chair of the Bicameral Congressional Caucus on Parkinson’s Disease (Caucus).
 
Help Secure Funding for Defense Parkinson's Research Program!
Wednesday, 25 March 2009
Please ask your Representative to support the only Parkinson's specific research program in the Federal government by signing onto the Neurotoxin Exposure Treatment Parkinson's Research (NETPR) program Dear Colleague. 
 
Increases for FDA and NIH in House FY09 Omnibus Appropriations Act
Tuesday, 24 February 2009
On Monday, Congressman Dave Obey, Chairman of the House Appropriations Committee, introduced the Fiscal Year 2009 Omnibus Appropriations Act, a $410 billion bill that will complete the Fiscal Year (FY) 2009 Appropriations bills. 
 
Help Needed to Maintain $10 Billion for NIH in Final Stimulus!
Wednesday, 11 February 2009
Call your Members of Congress and urge them to maintain $10 billion for the National Institutes of Health (NIH) in H.R. 1, the American Recovery Reinvestment Act of 2009.  
 
Urge Obama to Issue Stem Cell Executive Order!
Friday, 06 February 2009
Today, the Coalition for the Advancement of Medical Research (CAMR), of which PAN is a founding member, sent a letter urging President Obama to issue a straightforward Executive Order that reverses President Bush’s policy on embryonic stem cell research (ESCR) and calls on the National Institutes of Health to issue appropriate ethical guidelines.  While we have no information causing us to believe that the commitment to reverse the restrictive Bush policy will not be kept, the delay in action from President Obama is beginning to cause us concern.
 
Support $10 billion for NIH in Economic Stimulus
Monday, 02 February 2009
E-mail your Senators now in support of funding for the National Institutes of Health (NIH) in the American Recovery Reinvestment Act of 2009.  Currently, the Senate is considering their version of the bill and it is expected that Senator Arlen Specter will offer an amendment to increase NIH funding from $3.5 billion to $10 billion during Senate floor consideration.
 
Parkinson's Community Voice Heard on NIH Funding in Stimulus!
Thursday, 15 January 2009
Today, the House Democratic leadership introduced the American Recovery and Reinvestment Bill of 2009, an $825 billion economic stimulus package that will be soon be considered by Congress.  The stimulus provides $1.5 billion for the National Institutes of Health (NIH) for expanding jobs in biomedical research to study diseases such as Parkinson’s disease.  As this bill is considered by Congress, the Parkinson’s community will work with Members of Congress to ensure support for NIH remains in the final legislation. 
 
Urge Your Member to Sign NIH Funding Letter Today!
Tuesday, 13 January 2009
Ask your Member of Congress to support a strong investment in biomedical research through the National Institutes of Health (NIH) in the upcoming economic stimulus package.
 
$1 Billion for NIH Included in Senate Economic Package
Wednesday, 19 November 2008
Senate Majority Leader Harry Reid and Senate Appropriations Committee Chairman Robert Byrd have introduced a $100.3 billion economic recovery package that includes $1 billion for the National Institutes of Health (NIH).  
 
Support NIH Funding in Economic Stimulus
Monday, 17 November 2008
This week, Congress is reconvening to finish the legislative business of the 110th Congress, including consideration of an economic stimulus package.   PAN is urging Congress to provide an additional $1.9 billion for the National Institutes of Health (NIH) in the economic recovery package currently being developed.
 
PAN Advocates for NIH Funding in Stimulus
Friday, 31 October 2008
PAN, in coalition with over 230 patient groups, scientific and medical societies, research institutions, and industry organizations, has sent a letter to the Honorable Nancy Pelosi urging Congress to include an additional $1.9 billion for the NIH in the economic stimulus package currently under consideration.
 
FDA Funding Will Increase In Tough Budget Year
Wednesday, 01 October 2008
The Alliance for a Stronger FDA, of which PAN is a member, applauds Congress for providing the FDA with increased funding for Fiscal Year 2009 in the Continuing Resolution.  
 
$25 Million Secured for NETRP Program
Monday, 29 September 2008
Congratulations!  Because of your hard work, the Parkinson’s disease community successfully secured $25 million for the NETRP program—our top priority this year!  
 
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