A Closer Look

Meet PAN Advocate Bruce McEvoy

Periodically PAN highlights one of our tireless volunteer advocates. PAN thanks all our advocates for your commitment and contributions to the Parkinson’s community. This week we are highlighting Bruce McEvoy, Florida Assistant State Director. More »

The Latest on Medicare Therapy Caps

Last week, Senate Finance Committee Chairman Ron Wyden (D-OR) introduced the Medicare SGR Repeal and Beneficiary Access Improvement Act of 2014 (S. 2110), which would permanently repeal Medicare therapy caps. This bill would also set up a new system for review of physical, occupational, and speech-language therapy claims. More »

March 31 Deadline for Health Care Exchanges Nears

The deadline to obtain a health care plan through the Health Insurance Exchanges, or Marketplaces, is rapidly approaching. As part of the Affordable Care Act, each individual must have health care coverage by March 31 or risk a tax penalty. The Exchanges are state-based marketplaces through which individuals and small employers can purchase health insurance. People who live in states that do not have marketplaces may purchase a health care plan through the federal exchange at healthcare.gov. More »

Action Needed: Ask Your Senators to Support Access to Care

Over the past few months, we have contacted you many times regarding the Medicare therapy caps. We've told you that the exceptions process expires on March 31st and that Congress is working on a permanent repeal; and we've asked you to contact your Members of Congress urging them to support a permanent repeal. Today, we're happy to report that a bill has been introduced in the Senate that includes a permanent repeal of the Medicare therapy caps. More »

PAN Advocate Lends Voice for Congressional Briefing on Telemedicine

Texas State Director Israel Robledo spoke this week during a congressional briefing on telemedicine hosted by Health IT Now. PAN is a member of Health IT Now, a broad based coalition of patient groups, provider organizations, employers, and payers that supports incentives to deploy health information technology to improve care, provider performance, patient outcomes, and to lower costs. More »

New Initiative Aims to Increase Diversity in Clinical Trials

Pharmaceutical Research and Manufacturers of America (PhRMA) and the National Minority Quality Forum have jointly launched I’m In, a new campaign to increase diversity in clinical trials. More »

PAN Supports Regenerative Medicine Promotion Act of 2014

On March 13, Senators Barbara Boxer (D-CA) and Mark Kirk (R-IL) introduced the Regenerative Medicine Promotion Act of 2014, which would create a Regenerative Medicine Coordinating Council within the Department of Health & Human Services, call for a detailed assessment of federal activities in regenerative medicine, and compare progress of national programs in this area to other countries. More »

Ask your Representative to Support the DoD Parkinson's Research Program!

Under the leadership of Representatives Carolyn Maloney (D-NY), Peter King (R-NY), and Chris Van Hollen (D-MD), co-chairs of the Congressional Caucus on Parkinson's Disease, a letter is circulating asking for $16 million in funding for the Department of Defense (DoD) Parkinson's research program in Fiscal Year (FY) 2015. More »

Advocacy Victory: Proposal Limiting Anti-Depressant Access Pulled

Yesterday, the Center for Medicare and Medicaid Services (CMS) announced it would not pursue a controversial proposal to remove antidepressants as a "protected class" under Medicare Part D at this time. Since the proposal was first announced in January 2014, PAN, along with other disease groups and stakeholders, has worked with Congress and CMS to raise awareness of the negative impact that this change in policy would have on people living with complex diseases. CMS' announcement shows, once again, the value and power of the collective patient advocacy voice! More »

Proposed Changes to Medicare Part D

In January, the Center for Medicare and Medicaid Services (CMS) issued a proposed rule for Medicare Part D that would greatly impact the Parkinson’s community if finalized. More »