This week, PAN staff have and will participate in several Parkinson’s community events and conferences. Here are some of the highlights:
15th Annual National Institute of Neurological Disorders and Stroke (NINDS) Udall Center Directors’ Meeting
On September 16 and 17, the Morris K. Udall Center directors met in Washington, DC to discuss their centers’ research work, ways the centers can continue to collaborate, and how they can work with nonprofits in the Parkinson’s community. The Morris K. Udall Centers are funded by NINDS specifically for Parkinson’s research. Amy Comstock Rick, CEO of PAN, presented a congressional update, made a call for researchers to join the advocacy effort, and joined a panel of other nonprofit leaders to answer questions from Udall Center directors on ways to collaborate.
Researchers Visit Capitol Hill
On September 17 and 18, three prominent Parkinson’s disease researchers joined PAN staff for meetings on Capitol Hill with the offices of Sen. Bob Casey (D-PA), Sen. John Barrasso (R-WY), Sen. Mike Enzi (R-WY), and Sen. Patty Murray (D-WA). Dr. Ted Dawson, Dr. Tom Montine, and Dr. John Trojanowski met with congressional staff to discuss the importance of biomedical research funding and the impact of sequestration on their work and that of their colleagues. With federal funding for next year and beyond in question, their time and efforts do make a difference. You can help too – right from home. Tell your Members of Congress  to protect federal funding for medical research.
FDA Workshop on Patient Preferences
On September 18, Jennifer Sheridan, director of policy at PAN, spoke at a workshop focused on understanding patient views on the benefits and risks of medical devices. The FDA’s Center for Devices and Radiological Health sponsored the workshop and Jennifer highlighted the importance of finding ways to incorporate the perspectives of patients throughout the clinical trial and review process.
Louisiana Walks for Parkinson’s
Hayley Carpenter, deputy CEO of PAN, will be attending the Louisiana Walks for Parkinson’s event this Saturday, September 21. The walk will take place in Audubon Park in New Orleans and all proceeds will fund patient advocacy, education, and support through the Big Easy Fleur De Lis Parkinson's Support Group in Metairie and PAN. To learn more or make a donation, visit parkinsonssupportla.com .
Davis Phinney Foundation Victory Summit Symposium
PAN CEO Amy Comstock Rick will be speaking at the Davis Phinney Foundation for Parkinson’s Victory Summit Symposium in the Twin Cities this Saturday, September 21. The symposium will be a day of inspiration and information from leading movement disorder neurologists and physical therapists. Amy will be holding a session on Parkinson’s advocacy. Click here  to learn more.
Date originally posted: September 20, 2013.