Parkinson's Disease Links

The web has become an increasingly important tool for people in the Parkinson's disease community to communicate.  In addition to the national Parkinson’s disease organizations, the links we have posted here are just a few of the hundreds of Parkinson's sites in America and around the world.  These sites provide a wide array of information that you may find relevant as you learn more about Parkinson's disease and the diverse Parkinson's community.

If you would like PAN to feature a link to your Parkinson's community website, please send us a request with the URL and a brief description of your site.

Benefits for People with Disabilities
The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. This site provides information about the criteria necessary to qualify for assistance, application forms, and frequently asked questions.

Braintalk
A web forum for those with PD or their caregivers.

The Center for Information & Study on Clinical Research Participation (CISCRP)
The Center for Information and Study on Clinical Research Participation (CISCRP) is a nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research participation and the role that each party plays as a participant in the process.

Clinical Trials
The U.S. National Institutes of Health , through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. By simply typing in the words Parkinson's disease, you can get a complete listing of all clinical trials for Parkinson's disease and contact information for each study.

Clognition
Almost anyone who has heard of Parkinson's Disease knows about the physical symptoms of PD, including tremors, generalized slowness of movement, stiffness of limbs, and gait or balance problems. What is less well known about PD is that it is not the motor symptoms that tend to do the most harm to quality of life. Cognitive changes coupled with stress is more often than not the culprit that precipitates job loss and family discord.

The Coalition for the Advancement of Medical Research (CAMR)
is comprised of nationally-recognized patient organizations, universities, scientific societies, foundations, and individuals with life-threatening illnesses and disorders, advocating for the advancement of breakthrough research and technologies in regenerative medicine - including stem cell research and somatic cell nuclear transfer - in order to cure disease and alleviate suffering.

Columbia Parkinson's Support Group, Columbia SC
The primary mission of the Columbia Parkinson's Support Group is to provide support, encouragement, information, contacts, and education  for Parkinson's patients, caregivers, family members and others who are working in related fields or have an interest in Parkinson's disease.

Congress.org
Congress.org is a joint venture of two Washington, D.C. area firms with expertise in communicating with Congress.

Embryonic Stem Cells
The University of Wisconsin-Madison site on the science of stem cells provides basic information such as what stem cells are, where they come from and how they can be used to treat disease. The site includes an interesting time lapse video of stem cell growth.

Family Caregiver Alliance
Through its pioneering programs of information, education, services, research and advocacy, the FCA sustains and supports the families and friends providing long term care.

GovBenefits.gov
The official government benefits website, this free and confidential site helps you find the government benefits you may be eligible to receive.

The Grassroots Connection
A website designed to increase your knowledge about neurological health and related issues and to facilitate your participation in regaining and maintaining quality of life through group advocacy.

HealingWell.com
Parkinson's Disease Resource Center offers news, treatment information, and a directory of useful sites.

The Melvin Weinstein Parkinson's Foundation
The Melvin Weinstein Parkinson's Foundation is a non-profit organization dedicated to purchasing equipment and health supplies necessary to maintain a safe and healthy environment for Parkinson’s Patients. With the aid of support groups they locate Parkinson’s Patients who have financial and medical needs, and find a way to help them.

Morris K. Udall Parkinson’s Disease Research Centers of Excellence
The Morris K. Udall Parkinson’s Disease Research Centers of Excellence fund Parkinson’s research at 14 centers across the country.  These centers utilize a multidisciplinary research approach to learn about the fundamental causes of Parkinson’s disease as well as to improve the diagnosis and treatment of Parkinson’s and related neurodegenerative disorders.

Mr. Long Term Care
An information site on long term care.

National Family Caregivers Association
An information source for caregivers nationwide. The site also provides contacts for support groups.

National Health Council
The National Health Council (NHC) provides a voice for the millions of people with chronic diseases and disabilities and their family caregivers.

The National Institute of Neurological Disorders and Stroke
This NIH disease specific web site was developed to facilitate research efforts on Parkinson’s Disease, track the progress of the PD Research agenda and Matrix activities, and provides both the research and lay community with information and resources. The Parkinson's disease research portfolio is managed by the NINDS Neurodegeneration Group.

National Respite Coalition
The National Respite Coalition works to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety.

National Respite Locator Service
The National Respite Locator Service helps parents, caregivers, and professionals find respite services in their state and local area. The service is also useful when a family travels or must move to another state.

The Northwest Parkinson's Foundation
The Northwest Parkinson's Foundation (NWPF) is a Washington state non-profit charity, established to make the Northwest a leading world center of movement disorders knowledge and treatment.

Parkinson’s Disease Research, Education, and Clinical Centers
The Veterans Affairs Department created six regional Parkinson’s Disease Research, Education, and Clinical Centers (PADRECCs), which provide comprehensive, state-of-the-art care to veterans with Parkinson’s disease.

Parkinson Pipeline Project
The Parkinson Pipeline Project is a grassroots group of advocates whose goal is to provide the patient perspective in the treatment development process.

ParkinsonsHealth.com
ParkinsonsHealth.com offers tips and tools for living with Parkinson's disease, information on symptoms and treatments, and animated illustrations related to PD. The site also offers registration for Life in the Balance™, a free newsletter for people and families living with PD."

The Parkinson's Institute
The Parkinson's Institute was founded to provide patient services and carry out medical research on movement disorders. Their Mission is to find the cause and cure for movement disorders; investigate better treatment and diagnostic tools; and to develop prevention strategies. Physicians at the Institute focus solely on movement disorders.

Patient Advocate Foundation
A non-profit organization that serves as a liason between patients and their insurers, employers, and/or creditors to resolve insurance, job discrimination, and/or debt crisis matters relative to their diagnosis through case managers and attorneys.  The Foundation seeks to safeguard patients through assuring access to care, maintenance of employment and preservation of their financial stability.

PD Index
A comprehensive directory of information about Parkinson's disease (PD) that is available throughout the Internet.

PD Plan4Life
Part personal journal, part informational, PD Plan4Life is a vehicle for sharing individual challenges with and triumphs over Parkinson’s, as well as "secret weapons"— exercise, participation in clinical trials, and advocacy.

PD Trials
Up-to-date information on Parkinson's disease clinical trials currently enrolling participants in the U.S. by symptom and location, as well as the latest news and views on what's happening in the world of Parkinson's trials.

PForce
A group of people taking on the challenge of increasing the awareness of PD, especially young on-set PD, as well as directly helping people dealing with this debilitating disease.

Research! America
Research! America's mission is to make medical research a much higher national priority.

Roll Call
This site offers political updates of Washington, D.C. activity. It is the newspaper of Capitol Hill.

University of Maryland Medicine Parkinson's Disease and Movement Disorders Center
The Maryland Parkinson's Disease and Movement Disorders Center at the University of Maryland offers comprehensive and expert diagnostic, medical, surgical and rehabilitative services for patients with Parkinson's disease and parkinsonism.

We Move
We Move promotes knowledge and understanding of movement disorders to help move the healthcare profession and patients forward towards better quality of treatment and care.

Young Onset Parkinson's Association
YOPA is comprised of Young Onset Parkinson's patients from around the country. The mission of YOPA is to raise public awareness and to offer support to those living with Young Onset Parkinson's disease. In addition, YOPA will coordinate with local, regional and national Parkinson's organizations in fundraising efforts for Parkinson's research.

YoungParkinsons.com
Another valuable link to those with Parkinson's disease and their caregivers.