Policy, Advocacy, News - 11/15/2013

Latest from PAN

New Report Says Budget Cuts Make Us Sicker, Poorer, and Less Secure
In a new report released on November 11 titled, Faces of Austerity: How Budget Cuts Have Made Us Sicker, Poorer, and Less Secure, NDD United tells the stories of people who have been affected by federal budget cuts, including across-the-board cuts known as sequestration. Learn more.

Your Tax Dollars at Work: Parkinson’s Researcher Develops Neurological Technologies, Supports Telemedicine
In order to showcase your tax dollars at work in your community, we are periodically featuring federally funded Parkinson’s researchers from across the country. Learn more.

Affordable Care Action Question of the Week
I only have Medicare Part A. Will I be required to get any additional coverage? Learn more.

PAN’s CEO Discusses Health Care Exchanges
Tune into our YouTube page to watch Amy Comstock Rick, CEO of PAN, discuss the Health Care Exchanges on the most recent segment of Comcast Newsmakers. Watch video.


Stay Engaged

Tell Your Members of Congress to End Sequestration and Protect Access to Therapy
Tell your Members of Congress to end sequestration and support policies that strengthen research and Parkinson’s care. Take action!

Webinar: Medicare Coverage of Therapy Services
Join PAN staff on November 21 at 2 p.m. EST to learn more about Medicare therapy services and PAN’s efforts to extend the exceptions process for medicare therapy caps and ultimately eliminate therapy caps altogether. Register today.

Call for Posters: Submit Your Abstracts & Share this Opportunity with Others
PAN is offering up to 18 postdoctoral fellows the chance to present their posters in a reception session at the 2014 PAN Leadership Forum designed for PAN advocate leaders from around the country. Deadline is 5 p.m. ET on December 6. Learn more.


In The News

Stakeholders Push Lawmakers To Include Long-Term Solution For Therapy Caps In SGR Package
InsideHealthPolicy.com | November 7, 2013
Therapy stakeholders are pushing lawmakers to add a long-term Medicare payment alternative to therapy caps — which Congress has overridden 10 times since the caps were enacted — as part of the plan to fix the flawed physician payment formula. More…

Dr. Francis Collins: Politics on the Frontier of Science
Wall Street Journal | November 8, 2013
If the early years of the 21st century often feel like a retread of the 1970s—economic anxiety, turmoil overseas, American leaders who don't seem to understand what the problems are much less how to fix them—the geneticist Francis Collins suggests less dispiriting resemblances. More…

Problems With Federal Health Portal Also Stymie Medicaid Enrollment
New York Times | November 12, 2013
Problems with the federal health insurance website have prevented tens of thousands of low-income people from signing up for Medicaid even though they are eligible, federal and state officials say, undermining one of the chief goals of the 2010 health care law. More…

Sequestration Victims Have 2 Big Demands
Huffington Post | November 12, 2013
With negotiations intensifying to craft a federal budget deal by mid-December, opponents of spending cuts known as sequestration are making a two-pronged push. More…

Martin Cruz Smith Reveals a Twist in His Tale
New York Times | November 11, 2013
It is probably no accident that the pivotal object in Martin Cruz Smith’s newest detective thriller, “Tatiana,” is a notebook nobody can read… In 1995, he received a diagnosis of Parkinson’s disease. But he kept it hidden, not only from the public, but from his publisher and editors. More…

I Was Pregnant When I Learned I Had Parkinson's Disease
Huffington Post | October 24, 2013
Sometimes I wonder how much my parenting has been affected by the fact that along with the obstetrical appointments, my growing belly and the morning sickness, there also was a new tremor in my right pinkie finger, a symptom that as a physician myself, I knew was not part of normal pregnancy. More…

Researcher Turned Patient
Tewksbury Town Crier | November 9, 2013
Sue Dubman has worked in the health care and life sciences field for more than 20 years. Yet despite her depth of knowledge, she was completely caught off guard in 2009 when she was diagnosed with Parkinson’s disease, a progressive disorder of the nervous system resulting in tremor, slowed movement, impaired balance and speech. More…

Potential Link Between Fungus And Parkinson’s Disease Discovered
RedOrbit.com | November 12, 2013
An organic compound that is often emitted by fungi has been found to cause symptoms of Parkinson’s disease in fruit flies, and could be linked to the neurodegenerative condition in humans, researchers claim in the Monday’s edition of the journal Proceedings of the National Academy of Sciences (PNAS). More…

Gebhardt and Flynn: Exercise can be beneficial for Parkinson's disease patients
Coloradoan | November 10, 2013
Parkinson’s disease is the most common movement disorder experienced worldwide and is second only to Alzheimer’s disease as the most common neurodegenerative disorder. More…

Dispelling Myths About Parkinson's Disease
Lexington Herald-Leader | November 10, 2013
Parkinson's disease is one of the most common neurological disorders, affecting about 1 million Americans. Despite its prevalence and the increased awareness due to celebrities like Michael J. Fox who have Parkinson's, the disease is often misunderstood. More…