Policy, Advocacy, News - 10/25/2013

Latest from PAN

PhRMA Committed to Sharing Clinical Trial Data
On October 15, PAN CEO Amy Comstock Rick was part of a panel discussion at a meeting titled, "Perspectives on Clinical Trial Data Sharing," which was sponsored by the Pharmaceutical Research and Manufacturers of America (PhRMA). Learn more.

Telemedicine Legislation in Your State
The American Telemedicine Association has developed a state-by-state breakdown of telemedicine legislation, including legislative mandates for private coverage, medicaid coverage, and other proposed bills at the state level. Learn more.

Affordable Care Act Update: Fixes Coming to Healthcare.gov
In the first few weeks since the Health Insurance Exchanges have been open across the country, there have been reports of technical glitches and issues. Learn more.


Stay Engaged

Is Your Member of Congress on the Parkinson's Caucus?
Encourage your Members of Congress to join the Congressional Caucus on Parkinson's Disease and increase political leadership for the Parkinson's community on Capitol Hill. Take action.


In The News

The Latest Research and Treatment Options for Parkinson's Disease
NPR | October 24, 2013
Every year, 60,000 people in the U.S. are diagnosed with Parkinson's disease. More…

NIH back to work but faces research backlog
CBS News | October 18, 2013
The National Institutes of Health is back in business now that the partial government shutdown has ended, but the agency has a long road ahead of before things get back to normal. More…

Elena Rios: Why Americans need telemedicine
Orange County Register | October 23, 2013
Now that implementation of the Affordable Care Act is upon us, and people are starting to enroll in the exchanges, it's important to look at how the role of technology can better facilitate coordinated care, lower costs and increase access to care for all Americans. More…

The 3 Roles of Michael J. Fox
New York Times | October 21, 2013
On Thursday, NBC will air the sixth episode of its new comedy series, "The Michael J. Fox Show." More…

Universities Stepping Up Efforts To Discover Drugs
Forbes | October 21, 2013
Merck's recent announcement about dramatically cutting R&D is just the latest such move in the pharmaceutical industry. More…

Many Ex-Players May Be Ineligible for Payment in N.F.L. Concussion Settlement
New York Times | October 17, 2013
When the N.F.L. agreed to pay $765 million to settle a lawsuit brought by 4,500 retired players who said the league hid from them the long-term impact of concussions, lawyers in the case said all retirees would be eligible for a share of the settlement. More…

Muhammad Ali Parkinson Center Expands Hispanic Outreach
HispanicBusiness.com | October 22, 2013
The Muhammad Ali Parkinson Center is reaching out to U.S. Hispanics, who are the ethnic minority most impacted by Parkinson's in the U.S. More…

Study with National Ballet School aims to see if dance can help Parkinson's patients
Huffington Post Canada | October 22, 2013
In a large, mirror-walled and sun-filled practice studio at Canada's National Ballet School, more than a dozen dancers are stretching out their arms as they step across the floor in time to the piano, following the moves of their instructors with earnest concentration. More…

Florida woman first to have robotic brain surgery for Parkinson's
WOFL-FOX 35 | October 21, 2013
Medicine controlled Clarita Beslack's tremors from Parkinson's Disease for five years.  Then something changed and by January 2013, she knew she needed a different kind of treatment. More…

New Parkinson's Drug Shows Promise
MedPage Today | October 18, 2013
IPX066, a new Parkinson's disease drug, lowered off time in patients with advanced disease and benefited newly diagnosed patients as well, researchers reported here. More…

U.S. clinical trial begun for treatment of Parkinson's Disease
The Santa Clarita Valley Signal | October 18, 2013
Boston Scientific is conducting clinical trials in the United States for a system that improves motor function in people who have Parkinson's Disease. More…