Policy, Advocacy, News - 8/16/2013

Latest from PAN

Neurologist Oliver Sacks will Join NPR’s Diane Rehm at 2013 Morris K Udall Awards Dinner
Attendees of the 2013 Morris K. Udall Awards Dinner will have the pleasure of hearing from renowned author and neurologist Oliver Sacks. Learn more.

New Medicare Therapy Resource to Share with Your Physical Therapist and Other Providers
The Parkinson’s Action Network and Muhammad Ali Parkinson’s Center at the Barrow Neurological Institute have come together to better explain Medicare therapy caps and the “exceptions process” to your physical therapists and other providers. Learn more.

PAN CEO Stresses Importance of Successful Public-Private Partnerships in Medical Innovation
In the latest installment of Pharmaceutical Research and Manufacturers of America’s Q&A series on their website, called Conversations, President and CEO John J. Castellani asks: How can we better utilize public-private partnerships to advance translation of science into new medicines for some of our most challenging diseases, such as neurological disorders? PAN CEO Amy Comstock Rick answers the question. Learn more.

Affordable Care Act Question of the Week
What is the individual mandate? Who is required to have health insurance? Learn more.


Stay Engaged

Take Action With PAN!

Ask Congress to Remove Medicare Therapy Caps
Please contact your Members of Congress and ask them to co-sponsor the Medicare Access to Rehabilitation Services Act of 2013 (H.R. 713/S. 367).

Connect with Your Elected Officials this August
Schedule meetings and reach out to your Members of Congress on social media this August while they are in their home states and districts. Summer Recess starts tomorrow and runs through September 8.


In The News

The Cost Of Creating A New Drug Now $5 Billion, Pushing Big Pharma To Change
Forbes | August 11, 2013
There’s one factor that, as much as anything else, determines how many medicines are invented, what diseases they treat, and, to an extent, what price patients must pay for them: the cost of inventing and developing a new drug, a cost driven by the uncomfortable fact than 95% of the experimental medicines that are studied in humans fail to be both effective and safe. More…

A Limit on Consumer Costs Is Delayed in Health Care Law
New York Times | August 12, 2013
In another setback for President Obama’s health care initiative, the administration has delayed until 2015 a significant consumer protection in the law that limits how much people may have to spend on their own health care. More…

Talking Scales And Telemedicine: ACO Tools To Keep Patients Out Of The Hospital
Kaiser Health News | August 15, 2013
When Bill Hill prepares to weigh himself each morning, a mechanical voice speaks to him from a small box on his nightstand that is connected to the scale on the floor. More…

Former boxing champion helps fight Parkinson's
Miami Herald | August 12, 2013
A slender 57-year-old woman shuffles her feet, narrows her eyes at the young man in front of her and throws a punch. Tina Hargrove repeatedly jabs at Tony Lamarr's upper body. Fortunately he's protected by a punch pad and it isn't Lamarr that Hargrove is after — it's freedom from the physical toll of Parkinson's disease. More…

U.S. Rep Posey Visits Alzheimer’s Center
Treasure Coast (FL) | August 8, 2013
For people dealing with Alzheimer’s or Parkinson’s diseases, every day is a challenge for them and their families. More…

Parkinson's update: VAI leads study of protein linked to disease, shows spread through brain
The Grand Rapids Press | August 13, 2013
Van Andel Institute researchers who took part in a new study investigating how Parkinson’s disease develops in the brain hope the findings will one day lead to drugs to slow the progression of symptoms. More…

Parkinson's disease breakthrough may lie in gene mutations
Medical News Today | August 13, 2013
A new study from the UK shows how genetic mutations linked to Parkinson's disease may play an important role in the death of brain cells by interfering with their natural process for getting rid of faulty mitochondria, the tiny powerhouses inside cells that are vital for effective cell functioning. More…