Policy, Advocacy, News - 8/2/2013

Latest from PAN

PhRMA: Pharmaceutical Companies Developing 27 New Drugs for Parkinson’s Disease
Yesterday, PhRMA released a report that highlights the nearly 450 medicines for neurological disorders currently in research and development, including 27 new drugs for Parkinson’s disease. Learn more.

Affordable Care Act (ACA) Question of the Week
How will the ACA and new Health Care Exchanges affect Medicare supplemental insurance coverage? Learn more.

Senate Defense Bill Includes Increase for Medical Research Funding
On August 1, the Senate Appropriations Committee approved its Fiscal Year (FY) 2014 Defense Appropriations bill, which includes a substantial increase for medical research funding. Learn more.

Postdoctorate Advocacy Prize
Nominations are now open for the 2013 PAN Postdoctoral Advocacy Prize. The $10,000-prize is awarded to a postdoctoral Parkinson’s disease researcher in the U.S. who has excelled in biomedical research advocacy and community outreach. Learn more.


Stay Engaged

Take Action With PAN!

Ask Congress to Remove Medicare Therapy Caps
Please contact your Members of Congress and ask them to co-sponsor the Medicare Access to Rehabilitation Services Act of 2013 (H.R. 713/S. 367).

Connect with Your Elected Officials this August
Schedule meetings and reach out to your Members of Congress on social media this August while they are in their home states and districts. Summer Recess starts tomorrow and runs through September 8.


In The News

NIH Begins Gene Therapy Trial for Parkinson’s Disease
Scientific American | July 26, 2013
All eyes were on Perry Cohen when he froze at the microphone. His voice failed him. He couldn’t read his notes. Eventually, the once-powerful Parkinson’s disease speaker had to be helped off the stage halfway through his speech. More…

Muhammad Ali and Parkinson's Disease: Is it fair to blame boxing?
USA Today | July 30, 2013
Boxing and Parkinson’s disease have been irrevocably linked ever since the most famous boxer in history and one of the most famous people in the world, Muhammad Ali, was diagnosed with the illness in 1984. More…

Fox says Parkinson's won't be focus of NBC comedy
San Jose Mercury News | July 27, 2013
Michael J. Fox says Parkinson's disease will not be a major storyline of his upcoming NBC comedy. More…

Parkinson's discovery yields potential to 'protect' nerve cells
Medical News Today | July 29, 2013
Biologists at The Scripps Research Institute in California have made a significant discovery that could lead to a new therapeutic strategy for Parkinson's disease. More…

Decreased Levels of Testosterone May Cause Symptoms of Parkinson's Disease in Men
Science World Report | July 27, 2013
A new study suggests that a sudden decline in testosterone could be linked to Parkinson's Disease in men. More…

Michael J. Fox Foundation Points Big Data At Parkinson's
InformationWeek | July 31, 2013
Health care providers and medical researchers typically rely on laborious, hands-on data collection and analysis approaches. More…

Indian Arts Organization Seeks to Help Artists with Parkinson’s Disease
Indian Country Today Media Network | July  27, 2013
Mary Lee Prescott is an elder member of the Oneida Indian Nation of Wisconsin who has pursued her passion for art since childhood, whether through painting, jewelry-making, or doll-making. Yet, in recent years, Mary has been struggling with the onset of Parkinson's Disease, which has limited her ability to do art. More…