Parkinson's Community Unites in Message to Capitol Hill This Week

PAN thanks the more than 100 PAN grassroots leaders who visited Capitol Hill and the hundreds of Parkinson’s advocates from across the country who called their Members of Congress during the Parkinson’s Day of Action. Their collective effort ensures that our policy priorities are understood by our elected officials and that our unified voice helps spur actions by Congress that get us closer to better treatments and a cure for Parkinson’s disease.

In addition to hundreds of calls, PAN grassroots leaders and researchers held over 160 meetings, drop-bys, and encounters with Members of Congress and their staff.

The Parkinson’s Day of Action was the final piece of a three-day long Leadership Forum held in Washington, DC this week. Grassroots leaders spent Monday learning about several ways they can advocate for PAN and the Parkinson’s community throughout the year. On Tuesday, advocates heard from national experts on topics ranging from Parkinson’s priorities at the National Institute of Neurological Disorders and Stroke to the need to repeal the Medicare therapy caps. The third day was spent taking their message to Capitol Hill.

PAN would also like to thank our generous sponsors who made this event possible. Learn more about them here.

Some photos of the Leadership Forum can be found on our Facebook page. If you see yourself in a photo, please tag yourself!

We also are pleased to announce that our effort to get more people active on Twitter this year helped get our messages out to more than 130,000 accounts on the social media platform. We even had some Members of Congress join us.

Mark your Calendars!
The 2015 PAN Forum will be held March 23 – 25, 2015 in Washington, DC and we’ve already started the important planning! Help us build upon the success of the 2014 Forum by helping us get more advocates on Capitol Hill in 2015. With more advocates, our critical messages will be heard by more elected officials and people of influence.
 
Please consider making a donation to the 2015 PAN Forum Scholarship Fund of $25, $50, $100, $250, or more. With your gift today, more members of the Parkinson's community will be able to attend the Forum and advocate on issues affecting those with Parkinson's disease.
 
Take a moment – right now – and make a tax-deductible contribution. All gifts made before midnight tonight, February 28, will be set aside for Forum scholarships for those who otherwise couldn't afford to attend.


Date originally posted:  February 28, 2014.