PAN's Efforts to Secure Research Dollars

Making the Cures Acceleration Network a Reality

PAN, along with a growing coalition of organizations, is leading the effort to fund the new Cures Acceleration Network (CAN) at the National Institutes of Health (NIH).  Authorized by Congress in the health reform legislation, CAN is the critical missing piece to ensuring faster translation of valuable basic scientific research at NIH into much-needed new drugs and therapies for people living with Parkinson’s and other diseases. Learn more.

Congress is authorized to appropriate up to $500 million to establish CAN in the Office of the Director at NIH.  It is very possible that because of the tight budgetary climate, the initial appropriation for CAN may be $50 to $150 million for Fiscal Year 2011. This level of funding would allow NIH to begin implementation of CAN, establish the CAN Board, analyze the research needs, and start the process of awarding research grants.

Stay tuned as we will be updating you on this important issue throughout the summer.

Department of Defense Parkinson’s Research

Over the past few months, a great deal of effort has gone into building support for the Department of Defense Parkinson’s research program.  The Neurotoxin Exposure Treatment Parkinson’s Research (NETPR) program is the only Parkinson’s-specific grant program funded by the federal government.

Since its inception by Congress in 1997, the program has funded over $300 million of Parkinson’s research.  NETPR funds research that advances the understanding of disease symptoms, means of diagnosis and prevention, and develops ways to expand therapeutic interventions for those living with Parkinson’s disease.

Unfortunately, funding for NETPR is not automatic—it is up to PAN and the Parkinson’s community to encourage Congress to fund the program each and every year.  The appropriations process for this year continues to move at a very slow pace but it remains vital that you communicate with your Members of Congress about this important Parkinson’s research program.  Please contact your Member of Congress today and help us secure funds for the innovative and successful NETPR program.