The recently released Senate Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies (L-HHS) Fiscal Year (FY) 2015 bill report includes language highlighting the 31 Parkinson’s research recommendations adopted by the National Institute of Neurological Disorders and Stroke (NINDS) in January. Learn more.
(WASHINGTON, July 31, 2014)—The Parkinson’s Action Network (PAN) will honor Rep. Henry A. Waxman (D-CA) with the Morris K. Udall Award for Public Service for his lifetime of work supporting federally funded research and health policies that improve the lives of people with Parkinson’s disease. Learn more.
The U.S. Senate is close to ratifying the Disability Treaty, but we need to add our community's voice. The Disability Treaty, more formally known as the United Nations Convention on the Rights of Persons with Disabilities, is an international agreement to protect and honor the rights of people with disabilities. Last week, the Senate Foreign Relations Committee passed the Disability Treaty with bipartisan support. Learn more.
The House Energy & Commerce Committee continues its work on the 21st Century Cures Initiative. Launched in May by Chairman Fred Upton (R-MI) and Representative Diana DeGette (D-CO), the bipartisan initiative is focused on understanding what steps Congress can take to accelerate the pace of cures in America. Learn more.
As many of you know, I made the decision in late spring that it was time for PAN to be led by someone new and for me to move on to new challenges. I have been at PAN for nearly 11 years and I will forever feel blessed to have worked with such an outstanding and committed community. My only regret is that I will not be serving as CEO when the breakthrough finally comes that turns Parkinson's around, but I know it is coming and I will be celebrating with all of you when it does. Learn more.
On June 30, Tennessee State Director Sue Laux shared a positive experience she had attending a town hall meeting with Rep. Phil Roe (R-TN) where she asked two questions on issues that matter to the Parkinson’s community. Learn more.
On July 14, PAN sent a letter of appreciation to Sen. Tom Harkin (D-IA) for introducing the Accelerating Biomedical Research Act. The legislation would give the Appropriations Committee the authority to increase funding for the National Institutes of Health (NIH) above the spending caps that are currently mandated by law until 2021, providing up to an additional $46.2 billion for medical research funding over the next seven years. Learn more.