A Closer Look

President Obama Releases FY 2015 Budget Request

President Obama released the first part of his $3.9 trillion budget proposal for Fiscal Year (FY) 2015 on March 4, 2014, with additional details expected in coming days. While the president’s budget is often viewed as a clear indication of the Administration’s priorities, much of the usual controversy over spending recommendations has been largely avoided this year due to the budget agreement passed by Congress in December that sets top-line spending levels for FY 2014 and FY 2015. More »

Parkinson's Community Unites in Message to Capitol Hill This Week

PAN thanks the more than 100 PAN grassroots leaders who visited Capitol Hill and the hundreds of Parkinson’s advocates from across the country who called their Members of Congress during the Parkinson’s Day of Action. Their collective effort ensures that our policy priorities are understood by our elected officials and that our unified voice helps spur actions by Congress that get us closer to better treatments and a cure for Parkinson’s disease. More »

PAN Grassroots Leader Participates in Senate Press Event

Connecticut Assistant State Director Steve DeWitte spoke at a press conference about two critical provisions in the Affordable Care Act (ACA) for people with Parkinson’s disease during PAN’s 2014 Leadership Forum. Steve was invited by Sen. Chris Murphy (D-CT) to participate in a press event highlighting some of the ACA’s benefits for people with chronic conditions. More »

FASEB's Deputy Executive Director Discusses Federal Research Funding on Comcast Newsmakers

Howard H. Garrison, deputy executive director for policy and director of the office of public affairs for the Federation of American Societies for Experimental Biology (FASEB), stressed the importance of federal research funding for the future of treatments and cures for some of our most devastating diseases. More »

Thank You for Adding Your Voice!

Yesterday, over one hundred of PAN's grassroots leaders were on Capitol Hill meeting with their Members of Congress to ask for increased funding for research and repeal of the Medicare therapy caps. But, they weren't alone. Throughout the day, as advocates walked the halls of Congress, their efforts were uplifted by your calls of support coming from back home. More »

Meet PAN Advocate Sarah King

Periodically, PAN highlights one of our tireless volunteer advocates. PAN thanks all our advocates for your commitment and contributions to the Parkinson’s community. This week we are re-releasing an interview we did with Sarah King, Southern California State Director and recipient of the 2014 Louis Fishman Advocacy Award. More »

FDA Approves New Parkinson's Drug

The Food and Drug Administration (FDA) has approved Northera, a new drug for the treatment of neurogenic  orthostatic hypotension (NOH), a condition associated with Parkinson's disease, multiple-system atrophy, and pure autonomic failure. More »

Participate in a National Parkinson's Study on Telemedicine

The University of Rochester in collaboration with the National Parkinson Foundation (NPF) is conducting a national study called Connect.Parkinson. This study will examine the feasibility and effectiveness of using video calls to bring expert Parkinson's disease care directly to patients' homes. More »

Medicare Therapy Caps Still in Limbo

Many people with Parkinson’s need physical, occupational, and/or speech-language therapy as they offer some of the only treatments available to maintain quality of life and independence. As you may recall, in December, Congress passed a three-month extension of the Medicare therapy caps exceptions process that allows people to receive medically necessary therapy over the $1,920 caps. More »

Davis Phinney Foundation Announces Call for Applications

The Davis Phinney Foundation for Parkinson’s is calling for Letters of Intent from researchers and program directors for two research funding tracks. The Foundation will commit up to $110,000 for research and/or program costs, and up to an additional $28,000 for research specifically in Colorado and/or program costs in Colorado. More »