A Closer Look

New Initiative Aims to Increase Diversity in Clinical Trials

Pharmaceutical Research and Manufacturers of America (PhRMA) and the National Minority Quality Forum have jointly launched I’m In, a new campaign to increase diversity in clinical trials. More »

PAN Supports Regenerative Medicine Promotion Act of 2014

On March 13, Senators Barbara Boxer (D-CA) and Mark Kirk (R-IL) introduced the Regenerative Medicine Promotion Act of 2014, which would create a Regenerative Medicine Coordinating Council within the Department of Health & Human Services, call for a detailed assessment of federal activities in regenerative medicine, and compare progress of national programs in this area to other countries. More »

Ask your Representative to Support the DoD Parkinson's Research Program!

Under the leadership of Representatives Carolyn Maloney (D-NY), Peter King (R-NY), and Chris Van Hollen (D-MD), co-chairs of the Congressional Caucus on Parkinson's Disease, a letter is circulating asking for $16 million in funding for the Department of Defense (DoD) Parkinson's research program in Fiscal Year (FY) 2015. More »

Advocacy Victory: Proposal Limiting Anti-Depressant Access Pulled

Yesterday, the Center for Medicare and Medicaid Services (CMS) announced it would not pursue a controversial proposal to remove antidepressants as a "protected class" under Medicare Part D at this time. Since the proposal was first announced in January 2014, PAN, along with other disease groups and stakeholders, has worked with Congress and CMS to raise awareness of the negative impact that this change in policy would have on people living with complex diseases. CMS' announcement shows, once again, the value and power of the collective patient advocacy voice! More »

Proposed Changes to Medicare Part D

In January, the Center for Medicare and Medicaid Services (CMS) issued a proposed rule for Medicare Part D that would greatly impact the Parkinson’s community if finalized. More »

New Telemedicine Coalition Launches

A new coalition has formed to promote the use of technology in the delivery of health services. PAN is among a diverse group of advisory members of The Alliance for Connected Care, which represents insurers, retail pharmacies, technology and telecommunications companies, and health care entrepreneurs. More »

Washington Post Publishes a Special Report on Caregiving

The Washington Post released a series of stories this week on caregiving in America. The series looks at the impact of the aging American population on caregivers and the important role caregivers play for Americans of all ages who have debilitating diseases and disabilities. More »

President Obama Releases FY 2015 Budget Request

President Obama released the first part of his $3.9 trillion budget proposal for Fiscal Year (FY) 2015 on March 4, 2014, with additional details expected in coming days. While the president’s budget is often viewed as a clear indication of the Administration’s priorities, much of the usual controversy over spending recommendations has been largely avoided this year due to the budget agreement passed by Congress in December that sets top-line spending levels for FY 2014 and FY 2015. More »

Parkinson's Community Unites in Message to Capitol Hill This Week

PAN thanks the more than 100 PAN grassroots leaders who visited Capitol Hill and the hundreds of Parkinson’s advocates from across the country who called their Members of Congress during the Parkinson’s Day of Action. Their collective effort ensures that our policy priorities are understood by our elected officials and that our unified voice helps spur actions by Congress that get us closer to better treatments and a cure for Parkinson’s disease. More »

PAN Grassroots Leader Participates in Senate Press Event

Connecticut Assistant State Director Steve DeWitte spoke at a press conference about two critical provisions in the Affordable Care Act (ACA) for people with Parkinson’s disease during PAN’s 2014 Leadership Forum. Steve was invited by Sen. Chris Murphy (D-CT) to participate in a press event highlighting some of the ACA’s benefits for people with chronic conditions. More »