A Closer Look

PAN Needs You

Three months ago, Medicare suggested removing antidepressants as a "protected class" under Medicare Part D. This would have meant hundreds of thousands of people with Parkinson's disease would have limited access to medications, which could have had life-threatening consequences. More »

Add Your Voice: Changes Proposed to Social Security Disability Rules for Parkinson's

The Social Security Administration (SSA) has issued a proposed rule to revise current regulations used to evaluate whether people with Parkinson's and other neurological disorders qualify for Social Security disability insurance (SSDI), marking the first broad-scale overhaul of the criteria since 1985. This is our opportunity as a community to fundamentally change for the better how SSA recognizes Parkinsonian syndrome and evaluates its effects for determining disability. More »

PAN Advocates in the News

This month, several PAN advocates have been featured in articles, on local TV, or have helped promote Parkinson’s Awareness Month through editorials. More »

Meet PAN Advocate Lisa Ikeda Bain

When Idaho State Director Lisa Ikeda Bain first got involved with PAN, she was attracted to the mission to advocate on behalf of the Parkinson’s community on federal policy issues and happy that she didn’t have to fundraise. Just five years later, she is becoming one of PAN’s most committed grassroots fundraisers and has set a goal to raise $10,000 for PAN in 2014. More »

PAN CEO Attends PhRMA Annual Meeting

The Pharmaceutical Research and Manufacturers of America (PhRMA) gathered business leaders, policymakers, and industry experts at their annual meeting April 9-11 in Washington, DC. More »

PAN Supports the ABLE Act

Rep. Ander Crenshaw (R-FL) and Sen. Bob Casey (D-PA) have introduced legislation to make it easier for people with disabilities, including Parkinson’s-related disabilities, to save for long-term care and quality of life expenses. More »

Research!America Launches "Ask Your Candidate" Campaign

Based on new polling data that shows Americans do not know if their elected officials support medical innovation and research, Research!America and partners, including PAN, have formed a new campaign to encourage congressional candidates to share their positions on these issues. More »

Join PAN in Honoring the Unsung Heroes

In addition to this being Parkinson's Awareness Month, April 6 - 12 is National Volunteer Week. The PAN staff and I want to take this opportunity to thank everyone who is active with PAN, but especially our 154 grassroots leaders around the country. These volunteers, many of whom work multiple hours each week raising awareness of PAN and Parkinson's policy issues, aided PAN in achieving the successes that we had in 2013. More »

Over 50 Signatures Collected in Support of DoD Parkinson's research

Thanks to your outreach, over 50 bipartisan members of the House of Representatives signed onto a letter requesting $16 million for the Department of Defense (DoD) Parkinson's Research program in Fiscal Year (FY) 2015. That's over 10 percent of the entire body of the House and a stunning show of support in a tough fiscal year for a program that means so much to our military and the broader Parkinson's community. More »

California Parkinson's Advocacy Summit

On Saturday, March 29, the California leadership team of PAN held the California Parkinson’s Advocacy Summit, which brought together people living with Parkinson’s, local organizations, researchers, and clinicians to discuss opportunities to engage in advocacy within the state of California. More »