A Closer Look

International Disability Treaty

The U.S. Senate is close to ratifying the Disability Treaty, but we need to add our community's voice. The Disability Treaty, more formally known as the United Nations Convention on the Rights of Persons with Disabilities, is an international agreement to protect and honor the rights of people with disabilities. Last week, the Senate Foreign Relations Committee passed the Disability Treaty with bipartisan support. Learn more.

PAN Participates in New Initiative for People with Parkinson's

PAN is pleased to be a national participating partner for Partners in Parkinson’s, a strategic health initiative of The Michael J. Fox Foundation and AbbVie. Learn more.

Update on the 21st Century Cures Initiative

The House Energy & Commerce Committee continues its work on the 21st Century Cures Initiative. Launched in May by Chairman Fred Upton (R-MI) and Representative Diana DeGette (D-CO), the bipartisan initiative is focused on understanding what steps Congress can take to accelerate the pace of cures in America. Learn more.

DOJ and HHS Launch Initiative to Combat Elder Abuse

The Department of Justice (DOJ) and the Department of Health and Human Services (HHS) have developed the Elder Justice Roadmap, a framework to prevent and combat elder abuse. Learn more.

Thank You and Goodbye

Dear Parkinson's Community,
As many of you know, I made the decision in late spring that it was time for PAN to be led by someone new and for me to move on to new challenges. I have been at PAN for nearly 11 years and I will forever feel blessed to have worked with such an outstanding and committed community. My only regret is that I will not be serving as CEO when the breakthrough finally comes that turns Parkinson's around, but I know it is coming and I will be celebrating with all of you when it does. Learn more.

Advocate Perspective: How to Have a Successful Town Hall Experience

On June 30, Tennessee State Director Sue Laux shared a positive experience she had attending a town hall meeting with Rep. Phil Roe (R-TN) where she asked two questions on issues that matter to the Parkinson’s community. Learn more.

Legislation Introduced to Increase NIH Funding

On July 14, PAN sent a letter of appreciation to Sen. Tom Harkin (D-IA) for introducing the Accelerating Biomedical Research Act. The legislation would give the Appropriations Committee the authority to increase funding for the National Institutes of Health (NIH) above the spending caps that are currently mandated by law until 2021, providing up to an additional $46.2 billion for medical research funding over the next seven years. Learn more.

PAN Staff Discusses Medicare Therapy Caps on Radio Program

Catherine Pugh, government relations manager at PAN, will be a guest on The Parkinson Radio Hour on Saturday, July 19 at 11 a.m. Tune into 1230 WBZT on the radio or online to hear Host Jeff Dowd ask Catherine about PAN’s work on Medicare therapy caps. Learn more.

New Report Outlines Devastating Effects of Budget Cuts on Health

The Coalition for Health Funding has released a new report titled, Faces of Austerity: How Budget Cuts Hurt America’s Health. The report provides a closer look at the impact of budget cuts on people from a diverse set of backgrounds and places in the United States. It also looks at how budget cuts have affected already existing programs, as well as future innovation. Learn more.

Budget Update: Senate Will Mark Up Defense Bill July 15

The Senate is expected to begin work on its version of the Fiscal Year (FY) 2015 Defense appropriations bill on Tuesday, July 15. The Defense bill includes funding for the Department of Defense (DoD) Parkinson's research program. Learn more.