New Lewy Body Dementia Educational Resource Now Available

A new informational booklet on Lewy body dementias (LBD) has been published by the National Institutes of Health for people living with LBD, their families, and healthcare providers.

LBD is a complex and challenging brain disease, impacting more than 1 million Americans. There are two types of LBD—dementia with Lewy bodies and Parkinson’s disease dementia. While the earliest signs of these two disorders differ, they share the same biological changes in the brain. Over time, people with either dementia with Lewy bodies or Parkinson’s disease dementia experience many of the same symptoms and challenges.

The booklet, a collaborative project of the Lewy Body Dementia Association (LBDA), the Shiley-Macros Alzheimer’s Disease Research Center, the National Institute on Aging (NIA), and the National Institute of Neurological Disorders and Stroke (NINDS), is designed to be an educational resource for both people with LBD and health professionals treating the disorder and may also be helpful for individuals who are experiencing or are concerned about cognitive changes in Parkinson’s disease.

Angela Taylor, Director of Programs at the LBDA, describes the publication as a “major milestone for Lewy body dementias.”

"To my knowledge, it is the first educational publication on LBD by any federal agency. We applaud the commitment that NIA and NINDS have shown to provide resources about Lewy body dementias and place vital information in the hands of LBD families and their healthcare providers," Taylor said.

Click here to read and download a copy of the new LBD resource.

Date originally posted: December 17, 2013.