July 2012 Monthly Message
PAN Launches Caregiver Interview Series
Caregivers are important members of the Parkinson's community, and their advocacy voices make a difference in the fight for better treatments and cures. The Parkinson's Action Network (PAN) hosted an interview series with three experts to help educate the community on caregiving, and what federal and state support might be available to spouses, partners, children, friends, and loved ones who help care for a person with Parkinson's disease. Click here to watch the interviews and learn about federal and state resources for caregivers.
Take PAN's Caregiver Survey!
Are you a caregiver or care partner? We'd like to hear from you. Caregiving issues are important to our community, so we've launched a short online survey to help us all better understand where the needs are, and how federal and state resources might be better put to use. Click here to take the survey. Thanks!
With Sequestration, Parkinson's Research Funding at Risk for Deep Cuts
Sequestration would be catastrophic for biomedical research, because it could mean approximately an 8% cut to the NIH budget -- meaning that more than a quarter of FY 2013. Scientific research is progressive and builds upon years of work. Sequestration will have a devastating impact on Parkinson's disease research. Click here to learn more about sequestration, and what you can do to encourage Congress to act now!
Advocate Profile: Mellany Lieuwen
As mom and mother-in-law to PAN's Florida State Directors Gretchen and Michael Church, Mellany Lieuwen is making her mark as PAN's Oregon State Director. In this interview, Mellany shares her thoughts on why she became an advocate, and why it's important for family members and friends to let their voices be heard. More…
Comcast Newsmakers: Debi Brooks
Debi Brooks is Co-Founder and Executive Vice Chairman of The Michael J. Fox Foundation for Parkinson's Research (MJFF). In this Comcast Newsmakers segment, she talks about why clinical trials are important and highlights the work of Fox Trial Finder. Click here to watch the interview.
Celebrate the Parkinson's Community at the 2012 Morris K. Udall Awards Dinner
Join the Parkinson's Action Network on October 3, 2012 for the Morris K. Udall Awards Dinner! The Honorable Patrick J. Kennedy is special program guest. Dinner Co-Chairs are Diane and John Rehm and Morton Kondracke. Honorary Dinner Chair is Michael J. Fox. PAN Florida State Directors Michael Church and Gretchen Garie-Church are the 2012 Milly Kondracke Award for Outstanding Advocacy honorees, and Colonel Karl Friedl is the Morris K. Udall Award for Outstanding Public Service honoree. It's an exciting night in Washington, and proceeds from the dinner support the work of the Parkinson's Action Network. Click here to learn more, become a sponsor, place a tribute message in the program book, or buy tickets to the dinner!
Save the Date: 2013 PAN Forum
The Parkinson's Action Network will hold its open-to-the-public 2013 PAN Forum in Washington, D.C., February 25 – 27, 2013. Watch your email for details in the coming months!
Parkinson's in the Media
A round-up of some recent news articles of interest to the Parkinson's community. Click here.