February 2013 Monthly Message

New Studies Estimate Economic Burden of Parkinson’s Disease
Two new studies published in Movement Disorders in the past two weeks shine the spotlight on the economic burden of Parkinson’s disease, which is believed to be at least $14.4 billion.  The national Parkinson’s organizations released a joint statement about the studies, and made a call for stronger research funding on the front end to reduce the economic burden on the back end.   Click here to read the statement.

President Obama Mentions Medical Research in State of the Union
In President Obama’s February 12 State of the Union address before Congress he said, “Now, if we want to make the best products, we also have to invest in the best ideas.  Every dollar we invested to map the human genome returned $140 to our economy.  Today, our scientists are mapping the human brain to unlock the answers to Alzheimer’s.  We’re developing drugs to regenerate damaged organs, devising new materials to make batteries 10 times more powerful.  Now is not the time to gut these job-creating investments in science and innovation.  Now is the time to reach a level of research and development not seen since the height of the space race.  We need to make those investments.”  Here at the Parkinson’s Action Network, we agree.  We will continue to press the president and Congress for stronger NIH funding and investment in Parkinson’s and other biomedical research funding and policy support for the Parkinson’s community.  

Parkinson’s Call-in Day is February 27!
On Wednesday, February 27, hundreds of Parkinson’s advocates will be on Capitol Hill, meeting with their Members of Congress to fight for federal funding for Parkinson’s disease research.  You can offer your support by phone!  Click here to learn more!

The Power of Advocacy
In this video, viewers will learn why it’s important to reach out to your Members of Congress …how to ask for what you want when emailing, calling, or meeting with congressional staff … why finding common ground and being realistic about the legislative process can help you get what you want … why telling your personal story, and the impact a policy decision has on you, is so important … and, how to follow up your meeting, phone call, or email effectively and get results!  Click here to watch!

PAN Announces Louis Fishman and Murray Charters Awards Honorees
On Monday, February 25 at the 2013 PAN Forum, Ann “AJ” Wasson will receive the Louis Fishman Advocacy Award, and Israel Robledo will receive the Murray Charters Award for Outstanding Service to the Parkinson’s Community.  Click here to learn more about these deserving honorees!

Parkinson’s Champion Diane Rehm Honored by Research!America
Diane Rehm, author and host of NPR's "The Diane Rehm Show," will be honored on March 13 with Research!America's 2013 Isadore Rosenfeld Award for Impact on Public Opinion for “emphasizing the value of research and increasing the level of awareness among policy makers and the public of medical conditions such as traumatic brain injuries, Parkinson's disease, multiple sclerosis, and Alzheimer's disease.”  With her husband, John, Diane is co-chair of PAN’s Morris K. Udall Awards Dinner.  Congratulations, Diane!

PAN Included in Advocacy Message
PAN was included in an important print advocacy message calling on Congress to invest in biomedical research.  The message ran February 12 in The Hill and Politico, on February 13 in The Hill, and on February 14 in Roll Call.  Click here to see it.

PAN Mourns the Passing of Colleen Wuebben
Parkinson’s advocate Colleen Wuebben passed away at her home in Omaha, Nebraska on February 13 with her family by her side.  Colleen was a Congressional Coordinator with PAN from 2007-2011 and participated in the PAN Forum in 2008, 2009, and 2010. Click here to read more.

SAVE THE DATE:  2013 Morris K. Udall Awards Dinner is October 8
This year’s Morris K. Udall Awards Dinner will be held in Washington, D.C. on Tuesday, October 8.  Watch your email inbox for more details in the coming months!

Parkinson’s in the Media
A round-up of some recent news articles of interest to the Parkinson’s community.  Click here.