Federal Initiatives

The Parkinson’s Action Network (PAN) works on a wide range of policy initiatives in order to achieve better governmental policies for the treatment and prevention of Parkinson’s disease and an improved quality of life for those living with the disease.  

Current Key Initiatives:

Securing Funding for Parkinson’s Research at the Defense Department
Every year the Parkinson’s community secures funding for innovative Parkinson’s research at the Department of Defense.  PAN advocates are currently working to secure $25 million for the only Parkinson’s-specific grant program in the federal government. Learn more.

Advocating for Patient Engagement at the Food and Drug Administration
PAN advocates for enhanced systemic processes at the Food and Drug Administration (FDA) to enable contributions from the Parkinson’s and other disease communities at the time critical decisions on issues of importance to our community are being made. More.

Developing a National System for Parkinson's and other Neurological Disease Data
We do not have accurate information regarding how many American’s have Parkinson’s disease. The National Neurological Diseases Surveillance System Act of 2011 (H.R. 2595/S.425) will establish a system to collect data on the incidence, prevalence, and epidemiology of Parkinson’s disease and many other neurological diseases.  Learn more.

Raise your voice to make a difference on the policies that impact people living with Parkinson’s disease!  Together, we can break down barriers to securing better treatments and a cure for Parkinson’s, secure additional funding for Parkinson’s research, and ensure that government programs benefit those living with Parkinson’s.  Take action today.