The Parkinson’s Action Network (PAN) works on a wide range of policy initiatives in order to achieve better governmental policies for the treatment and prevention of Parkinson’s disease and an improved quality of life for those living with the disease.
Current Key Initiatives:
Federal Research Funding and Preserving Access to Therapy Services and Treatment
Congress is moving forward with the FY 2015 funding process under the constraints of the budget agreement passed in December 2013 that limits top-line spending, and the president has recently released his FY 2015 budget proposal. Congress is also debating fundamental reform to the way Medicare doctors are reimbursed for their services. As part of this effort, there is an opportunity to seek permanent repeal of the Medicare therapy caps.
- PAN is requesting at least $32 billion for the National Institutes of Health (NIH) and an increase for the National Institute of Neurological Disorders and Stroke (NINDS) in FY 2015
- PAN is requesting at least $16 million for the Department of Defense Parkinson’s research program (also known as NETPR) in FY 2015.
Access to Therapy Services:
- PAN supports permanent repeal of the Medicare therapy caps to protect patient access to medically necessary physical, occupational, and speech-language therapy services.
- There is an opportunity to seek repeal through pending legislation to reform the Medicare Sustainable Growth Rate (SGR) formula that determines how doctors are paid for providing Medicare services.
- In the alternative, PAN supports an extension of the Medicare therapy caps exceptions process, which is set to expire March 31, 2014.