The Parkinson’s Action Network (PAN) works on a wide range of policy initiatives in order to achieve better governmental policies for the treatment and prevention of Parkinson’s disease and an improved quality of life for those living with the disease.
Current Key Initiatives:
Ending Sequestration and Preserving Access to Therapy Services and Treatment
A bipartisan budget conference committee opened negotiations on October 30, 2013 to find a path forward on Fiscal Year 2014 spending and to address sequestration, which will remain in effect through 2021 if Congress does not take action. The committee has a self-imposed deadline of December 13 to reach an agreement. PAN sent a letter to all 29 members of the committee urging them to:
- End sequestration and protect funding for critical medical research initiatives at the National Institutes of Health, the Department of Defense Parkinson’s research program, and drug and device reviews the Food and Drug Administration;
- Extend the Medicare therapy caps exceptions process, which ensures that people with Parkinson’s and other chronic illnesses have access to the medically necessary therapy services;
- Extend the Research and Development tax credit to incentivize investment in medical innovation;
- Consider an expansion of telemedicine services to improve access to care for people with Parkinson’s and reduce overall health care costs.
Join PAN and the Parkinson’s community in our efforts to ensure every single Member of Congress understands that we cannot afford any more cuts to medical research funding and innovation – and we cannot allow people with Parkinson’s to be denied life-changing therapy services.