About PAN

We are the unified voice of the Parkinson’s community advocating for better treatments and a cure.  In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.

Today PAN serves as the voice of Parkinson's on numerous public policy issues affecting the Parkinson's community.  In addition to continuing our work on NIH funding and research, the Parkinson's community is now a powerful voice on many crucial issues including Parkinson's-specific programs at the Departments of Defense and Veteran's Affairs, FDA drug approval issues, and HHS programs (Medicare and Social Security).

We at PAN have established a strong national grassroots advocacy program, which drives our success on PD-related issues.  PAN continues to be the leading voice for patient advocacy in Washington, D.C., working to bring much-needed awareness to the public and lawmakers about the effects of Parkinson's disease.  We hope that with greater understanding, we will make great strides in finding better treatments and a cure for Parkinson's disease.

PAN’s Board of Directors helps lead the organization in its cause to find better treatments and a cure for Parkinson’s disease.  Our staff works with the grassroots advocates to push for better policies for the Parkinson’s community.  To learn more about how PAN is structured through the staff and grassroots network, please click here.

PAN was founded in 1991 by Joan Samuelson who, when diagnosed with Parkinson’s in 1987, realized the disease was not receiving enough funding or attention from the Federal government.  Joan left the practice of law and put her hard work and creativity into building PAN so that there would be an organization to educate those with Parkinson’s how to advocate for themselves.