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2008 Forum Agenda



14th ANNUAL PAN FORUM

Research
&
Public Policy Forum
Schedule & Related Events
February 2-4, 2008

Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, DC 20001



Saturday, February 2, 2008
All Times and Speakers are Subject to Change

8:30 –  9:30 am
Registration Check-in/Continental Breakfast 
9:30 – 10:00 amWelcome & Introduction
 Amy Comstock Rick, PAN Chief Executive Officer
10:00 – 11:30 amIntroduction Advocacy Training Session
Monica Billger, PAN Director of Outreach    

Advanced Advocacy Training
Mary McGuire Richards, PAN Deputy Chief Executive Officer
11:30 – 11:45 am
Lunch Pick Up/Break
11:45 – 1:15 pmBox Lunch
Plenary Session:  "Food and Drug Administration, Drug Development,
and the Critical Path"
Moderator: Mary McGuire Richards

Panel:
Janet Woodcock, M.D., Deputy Commissioner,
Chief Medical Officer, FDA
Christopher Milne, D.V.M., Assistant Director
Tufts Center for the Study of Drug Development
Jeffrey Cossman, M.D., Chief Scientific Officer,
The Critical Path Institute
Diane Dorman, Vice President for Public Policy, NORD
1:15 – 1:45 pmPolicy Discussion:  Mary McGuire Richards
1:45 – 2:00 pm
Break
2:00 – 3:00 pm
Keynote Speaker:  Davis Phinney, Former Olympian
and Professional Road Bicycle Racer
Introduction:  Anne Udall, PAN Board of Directors Chair
3:00 – 3:15 pm    Break (snacks available)
3:15 – 5:00 pm
Plenary Session:  Emerging Therapies: Parkinson’s
Treatments in the Pipeline

Moderator: Dave Heydrick, M.D.

Panel:
Robert A. Hauser, M.D., M.B.A. Bayer Healthcare
Director, Parkinson's Disease & Movement
Disorders Center Chair, Clinical Signature
Interdisciplinary Program in Neuroscience,
University of South Florida
Kent S. Allenby, MD, FACP Vice President,
Drug Development, Kyowa Pharmaceutical
6:00 – 6:15 pmGroup Photo
6:15 - 7:00 pm
Cocktail Reception
7:00 – 8:30 pm 
Louis Fishman Advocacy Awards Dinner
Keynote Speaker:  Greg Simon, President,
FasterCures The Center for Accelerating
Medical Solutions
Presentation of Awards:  Anne Udall

 
Sunday, February 3, 2008
All Times and Speakers are Subject to Change

8:00 – 9:00 amRegistration Check-in/Continental Breakfast 
9:00 – 10:45 amPlenary Session:  Federally Funded Parkinson’s
Disease Research

Moderator: Diane DiEuliis, Ph.D.  Senior Policy Analyst,
Office of Science and Technology Policy Executive Office
of the President, Neurodegeneration Program Office,
National Institute of Neurological Disorders and Stroke

Panel:
Colonel Karl Friedl, U.S. Army Medical Research &
Materiel Command's (USAMRMC)
Caroline M. Tanner, M.D., Ph.D., The
Parkinson’s Institute
William Scott, Ph.D., Miami Institute for Human
Genomics
10:45 – 11:15 amPolicy Discussion:  Mary McGuire Richards
11:15 – 11:30 am
Break
11:30 – 12:30 pmBox Lunch
Introduction:  Anne Udall
Keynote Speaker:  Story C. Landis, Ph.D.,
Chair of the National Institutes of Health’s
Stem Cell Task Force
12:30 – 12:45 pmBreak
12:45 – 2:45 pmPlenary Session:  Stem Cell Research in the States
Introduciton:  Amy Comstock Rick
Kim Love, President of Kimberly Love Consulting
2:45 – 3:00 pmBreak (snacks available)
3:00 – 4:15 pmAdvocacy Breakout Sessions

1.)  Relationships & PD
Michael Church & Gretchen Garie Church

2a.)  Hope
Nina Brown

2b.)  Genetics and Parkinson’s:  "A Personal Story
        of
Resilience and Hope"
Linda O’Leary

3)  Yoga:  A Health-Minded Way to Improve Movement
      & Enjoy a Better Quality of Life
Warren Spencer

4)  DBS Panel - A Patient's Perspective
Carol Meenen and Jackie Hunt Christensen
4:15 - 4:30 pm
Break
4:30 – 5:00 pmPlenary Sessions:  Hill Day Logistics &
Open Session Q&A
6:00 pm
OPTIONAL Evening Activity
“Life Is For The Living”
Stem Cell Research: The People, The Politics, The Science, The Hope
A documentary by Michael Rubyan

Monday, February 4, 2008

8:00 – 9:00 am Continental Breakfast
9:00 am – 5:00 pmCapitol Hill Visits

  

   
 

Sponsored By:
Medtronic Foundation Vernalis
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